The NCCN Oncology Research Program (ORP) strives to improve the quality of life for patients and reduce cancer-related deaths by advancing cancer therapies through research. Since the program’s establishment in 1999, the NCCN ORP has brought millions of dollars in research grants to investigators at NCCN Member Institutions. Research grants are provided to NCCN through collaborations with pharmaceutical and biotechnology companies; these grants are in turn used to support scientifically meritorious cancer research efforts.
NCCN ORP studies typically explore new avenues of clinical investigation and seek answers to important cancer-related questions. All studies are approved and funded through a scientific peer-review process and are overseen by the ORP.
This feature highlights an NCCN study funded through the grant mechanism.
The CLL/SLL Care Road Map: Accessible, Flexible, and Interactive Web-Enabled Resources for High-Quality Treatment Decisions
Principal Investigator: Larry Cripe, MD
Area of Investigation: Quality
Institution: Indiana University School of Medicine and IU Simon Comprehensive Cancer Center
The CLL/SLL Care Road Map is a quality project aimed at developing an accessible, flexible, and interactive resource that provides a framework to facilitate high-quality treatment decision–making and patient–oncologist communication.
The CLL/SLL Care Road Map will be developed iteratively through multiple cycles of user-centered design. For each cycle, a different cohort consisting of patients with chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) and health care provider informants will undergo cognitive task analysis interviews and complete the System Usability Scale (SUS) of the most current CLL/SLL Care Road Map prototype. After the iterative cycles are complete, the resulting CLL/SLL Care Road Map will be used in a pilot feasibility and acceptability study. The feasibility of identifying and enrolling patients with CLL/SLL prior to a treatment decision will be the pilot study’s primary outcome; the acceptability of the tool will be evaluated by interviewing enrolled subjects about their experiences and asking them to complete the SUS survey.
Primary Objective/Aims:
• Develop a CLL/SLL first-line treatment decision map—the CLL/SLL Care Road Map— that provides a framework to facilitate high-quality decision-making and communication
• Develop accessible, flexible, and interactive web-enabled communication and decision-making resources, such as the CLL Mind Map and the Patient First Resources, as part of the CLL/SLL Care Road Map which meet the information needs of patients, oncologists, and other members of the oncology care team and overcome barriers to high-quality decisions
• Test the feasibility and acceptability of the CLL/SLL Care Road Map in academic and community practices and further refine the implementation strategy to encourage adoption
• Test dissemination strategies in collaboration with CLL/SLL patient advocacy groups
Contact: Larry Cripe, MD • 317-948-1186 • lcripe@iu.edu
