Bleyer A . The adolescent and young adult gap in cancer care and outcome. Curr Probl Pediatr Adolesc Health Care 2005;35:182–217.
Bleyer A , O’Leary M , Barr R , eds. Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age, Including SEER Incidence and Survival: 1975–2000. NIH Pub. No. 06-5767. Bethesda, MD: National Cancer Institute; 2006.
Weaver MS , Heinze KE , Bell CJ , et al.. Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: an integrative review. Palliat Med 2016;30:212–223.
Sansom-Daly UM , Wakefield CE , Patterson P , et al.. End-of-life communication needs for adolescents and young adults with cancer: recommendations for research and practice. J Adolesc Young Adult Oncol 2020;9:157–165.
Weaver MS , Heinze KE , Kelly KP , et al.. Palliative care as a standard of care in pediatric oncology. Pediatr Blood Cancer 2015;62(Suppl 5):S829–833.
Wein S , Pery S , Zer A . Role of palliative care in adolescent and young adult oncology. J Clin Oncol 2010;28:4819–4824.
Pritchard S , Cuvelier G , Harlos M , et al.. Palliative care in adolescents and young adults with cancer. Cancer 2011;117(10 Suppl):2323–2328.
Hinds PS , Drew D , Oakes LL , et al.. End-of-life care preferences of pediatric patients with cancer. J Clin Oncol 2005;23:9146–9154.
Wiener L , Ballard E , Brennan T , et al.. How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations. J Palliat Med 2008;11:1309–1313.
Lyon ME , Jacobs S , Briggs L , et al.. Family-centered advance care planning for teens with cancer. JAMA Pediatr 2013;167:460–467.
Lyon ME , Garvie PA , McCarter R , et al.. Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families. Pediatrics 2009;123:e199–206.
Wiener L , Zadeh S , Battles H , et al.. Allowing adolescents and young adults to plan their end-of-life care. Pediatrics 2012;130:897–905.
Friebert S , Grossoehme DH , Baker JN , et al.. Congruence gaps between adolescents with cancer and their families regarding values, goals, and beliefs about end-of-life care. JAMA Netw Open 2020;3:e205424.
- Search Google Scholar
- Export Citation
. Friebert S Grossoehme DH Baker JN Congruence gaps between adolescents with cancer and their families regarding values, goals, and beliefs about end-of-life care. JAMA Netw Open 2020; 3: e205424. 32427325 10.1001/jamanetworkopen.2020.5424
Johnston EE , Alvarez E , Saynina O , et al.. End-of-life intensity for adolescents and young adults with cancer: a Californian population-based study that shows disparities. J Oncol Pract 2017;13:e770–781.
Mack JW , Chen LH , Cannavale K , et al.. End-of-life care intensity among adolescent and young adult patients with cancer in Kaiser Permanente Southern California. JAMA Oncol 2015;1:592–600.
Mack JW , Chen K , Boscoe FP , et al.. High intensity of end-of-life care among adolescent and young adult cancer patients in the New York State Medicaid program. Med Care 2015;53:1018–1026.
Johnston EE , Bogetz J , Saynina O , et al.. Disparities in inpatient intensity of end-of-life care for complex chronic conditions. Pediatrics 2019;143:e20182228.
Roeland EJ , Lindley LC , Gilbertson-White S , et al.. End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer 2020;126:886–893.
Baile WF , Lenzi R , Parker PA , et al.. Oncologists’ attitudes toward and practices in giving bad news: an exploratory study. J Clin Oncol 2002;20:2189–2196.
Delvecchio Good MJ , Good BJ , Schaffer C , et al.. American oncology and the discourse on hope. Cult Med Psychiatry 1990;14:59–79.
Lamont EB , Christakis NA . Prognostic disclosure to patients with cancer near the end of life. Ann Intern Med 2001;134:1096–1105.
Mack JW , Fasciano KM , Block SD . Communication about prognosis with adolescent and young adult patients with cancer: information needs, prognostic awareness, and outcomes of disclosure. J Clin Oncol 2018;36:1861–1867.
Lindley LC , Keim-Malpass J , Svynarenko R , et al.. Pediatric concurrent hospice care: a scoping review and directions for future nursing research. J Hosp Palliat Nurs 2020;22:238–245.
Lindley LC . Health care reform and concurrent curative care for terminally ill children: a policy analysis. J Hosp Palliat Nurs 2011;13:81–88.
Mooney-Doyle K , Keim-Malpass J , Lindley LC . The ethics of concurrent care for children: a social justice perspective. Nurs Ethics 2019;26:1518–1527.
Lindley LC , Edwards S , Bruce DJ . Factors influencing the implementation of health care reform: an examination of the Concurrent Care for Children provision. Am J Hosp Palliat Care 2014;31:527–533.
Walter JK , Rosenberg AR , Feudtner C . Tackling taboo topics: how to have effective advanced care planning discussions with adolescents and young adults with cancer. JAMA Pediatr 2013;167:489–490.