is suboptimal. To address these shortcomings, the NIH initiated the Patient-Reported Outcomes Measurement Information System (PROMIS) program in 2004 to standardize PRO item banks, resulting in the development of 96 PROMIS adult domains assessing
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Michelle Guan, Gillian Gresham, Arvind Shinde, Isaac Lapite, Jun Gong, Veronica R. Placencio-Hickok, Christopher B. Forrest, and Andrew E. Hendifar
Hermioni L. Amonoo, Elizabeth Daskalakis, Emma C. Deary, Monica H. Bodd, Matthew J. Reynolds, Ashley M. Nelson, Richard Newcomb, Tejaswini M. Dhawale, Daniel Yang, Selina M. Luger, Jillian L. Gustin, Andrew Brunner, Amir T. Fathi, Thomas W. LeBlanc, and Areej El-Jawahri
, approach-oriented, avoidant) and patient-reported outcomes (anxiety, depression, PTSD, and QoL). Given the potential collinearity between anxiety, depression, PTSD, and QoL, these outcomes were modeled separately. To assess the relationship between coping
Linda Watson, Siwei Qi, Andrea DeIure, Eclair Photitai, Lindsi Chmielewski, and Louise Smith
M , Rivera YM , . PRO-cision Medicine Methods Toolkit to address the challenges of personalizing cancer care using patient-reported outcomes: introduction to the supplement . Med Care 2019 ; 57 ( Suppl 1 ): S1 – 7 . 8. Watanabe S
Tiffany Li, Hannah C. Timmins, Terry Trinh, David Mizrahi, Michelle Harrison, Lisa G. Horvath, Peter Grimison, Michael Friedlander, Matthew C. Kiernan, Madeleine T. King, Claudia Rutherford, David Goldstein, and Susanna B. Park
CIPN, with patient-reported outcome measures (PROMs) recognized as valuable tools that provide a patient-based perspective essential to accurate assessment. 5 Previously demonstrated discordance between patient- and clinician-reported CIPN 6 suggests
Meagan S. Whisenant, Faith A. Strunk, Debasish Tripathy, and Loretta A. Williams
Background: The use of disease-specific patient-reported outcomes (PROs) is critical for facilitating individualized symptom monitoring and improving cancer patient outcomes. The MD Anderson Symptom Inventory (MDASI) is a PRO measure of symptom
Joseph A. Greer, Beverly Moy, Areej El-Jawahri, Vicki A. Jackson, Mihir Kamdar, Juliet Jacobsen, Charlotta Lindvall, Jennifer A. Shin, Simone Rinaldi, Heather A. Carlson, Angela Sousa, Emily R. Gallagher, Zhigang Li, Samantha Moran, Magaret Ruddy, Maya V. Anand, Julia E. Carp, and Jennifer S. Temel
prospectively from enrollment. 36 Terminal-decline joint modeling is an advantageous approach to account for deterioration in patient-reported outcomes closer to death while using a mixed-effects model for longitudinal outcomes to provide valid estimates for
Ryan D. Nipp, Brandon Temel, Charn-Xin Fuh, Paul Kay, Sophia Landay, Daniel Lage, Esteban Franco-Garcia, Erin Scott, Erin Stevens, Terrence O’Malley, Supriya Mohile, William Dale, Lara Traeger, Ardeshir Z. Hashmi, Vicki Jackson, Joseph A. Greer, Areej El-Jawahri, and Jennifer S. Temel
training to blend the disciplines of geriatrics and palliative care. We sought to determine the feasibility and acceptability of this intervention and to estimate effect sizes for improving patient-reported outcomes. We hypothesized that the
Ryan D. Nipp, Leah L. Thompson, Brandon Temel, Charn-Xin Fuh, Christine Server, Paul S. Kay, Sophia Landay, Daniel E. Lage, Lara Traeger, Erin Scott, Vicki A. Jackson, Nora K. Horick, Joseph A. Greer, Areej El-Jawahri, and Jennifer S. Temel
-up. Statistical Analysis We used descriptive statistics to evaluate participants’ demographic and clinical characteristics, patient-reported outcomes, and their healthcare use and survival outcomes. To examine relationships between patients being categorized as
Areej El-Jawahri, Deborah Forst, Alyssa Fenech, Keri O. Brenner, Amanda L. Jankowski, Lauren Waldman, Isabella Sereno, Ryan Nipp, Joseph A. Greer, Lara Traeger, Vicki Jackson, and Jennifer Temel
their cancer. Figure 1. Patients’ perceptions of their treatment goal and of their oncologist’s goal. Association Between Patients’ Perceptions of Treatment Goals and Patient-Reported Outcomes Figures 2 and 3 depict the rates of clinically significant
Patricia I. Moreno, Frank J. Penedo, Felicia M. Knaul, Carina Oltmann, Michael T. Huber, and Mariana Khawand-Azoulai
The aim of systematic symptom screening and monitoring using patient-reported outcomes (PROs) is to collect actionable data and provide responsive care that is centered around patients’ needs. Recent evidence demonstrates that routine assessment
