NCCN Policy Summit: Cancer Care in the Workplace: Building a 21st Century Workplace for Patients, Survivors, and Caretakers

Authors:
Victoria Hood National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania

Search for other papers by Victoria Hood in
Current site
Google Scholar
PubMed
Close
 MPP
,
Lindsey Bandini National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania

Search for other papers by Lindsey Bandini in
Current site
Google Scholar
PubMed
Close
 MPH
,
Taneal Carter National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania

Search for other papers by Taneal Carter in
Current site
Google Scholar
PubMed
Close
 MS, MPA
,
Alyssa Schatz National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania

Search for other papers by Alyssa Schatz in
Current site
Google Scholar
PubMed
Close
 MSW
,
John Sweetenham Southwestern Simmons Comprehensive Cancer Center, Dallas, Texas

Search for other papers by John Sweetenham in
Current site
Google Scholar
PubMed
Close
 MD
,
Warren Smedley The Kinetix Group Oncology, New York, New York

Search for other papers by Warren Smedley in
Current site
Google Scholar
PubMed
Close
 DSc, MSHA, MSHQS
,
Joanna Fawzy Morales Triage Cancer, Chicago, Illinois

Search for other papers by Joanna Fawzy Morales in
Current site
Google Scholar
PubMed
Close
,
Rebecca V. Nellis Cancer and Careers

Search for other papers by Rebecca V. Nellis in
Current site
Google Scholar
PubMed
Close
 MPP
,
Randy A. Jones University of Virginia School of Nursing, Charlottesville, Virginia

Search for other papers by Randy A. Jones in
Current site
Google Scholar
PubMed
Close
 PhD, RN
,
Lynn Zonakis Zonakis Consulting, Sedona, Arizona

Search for other papers by Lynn Zonakis in
Current site
Google Scholar
PubMed
Close
 BSN
, and
Robert W. Carlson National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania

Search for other papers by Robert W. Carlson in
Current site
Google Scholar
PubMed
Close
 MD
Restricted access

Survival rates for people with cancer and quality of life for survivors have increased significantly as a result of innovations in cancer treatment, improvements in early detection, and improved healthcare access. In the United States, 1 in 2 men and 1 in 3 women will be diagnosed with cancer in their lifetime. As more cancer survivors and patients remain in the workforce, employers must evaluate how they can adjust workplace policies to meet employee and business needs. Unfortunately, many people still encounter barriers to remaining in the workplace following a cancer diagnosis for themselves or a loved one. In an effort to explore the impacts of contemporary employment policies on patients with cancer, cancer survivors, and caregivers, NCCN hosted the Policy Summit “Cancer Care in the Workplace: Building a 21st Century Workplace for Cancer Patients, Survivors, and Caretakers” on June 17, 2022. This hybrid event, through keynotes and multistakeholder panel discussions, explored issues regarding employer benefit design, policy solutions, current best and promising practices for return to work, and how these issues impact treatment, survivorship, and caregiving in the cancer community.

Submitted December 6, 2022; final revision received January 17, 2023; accepted for publication February 1, 2023.

Disclosures: The authors have disclosed that they have no financial interests, arrangements, affiliations, or commercial interests with the manufacturers of any products discussed in this article or their competitors. V. Hood, L. Bandini, T. Carter, A. Schatz, and R.W. Carlson are employed by NCCN.

Sponsor: Boehringer Ingelheim Pharmaceuticals, Inc.

Supported by: 2seventy bio; ADC Therapeutics; AmerisourceBergen; Astellas; AstraZeneca, BeiGene Ltd.; Bluebird Bio; Bristol Myers Squibb; Eisai Inc.; EMD Serono; (Merck KGaA); EQRx; Exelixis; Foundation Medicine, Genentech, GlaxoSmithKline; Helsinn Healthcare; Heron; Incyte Corporation; Janssen Oncology; Kite Pharma, Lilly; Merck & Co. (Merck Sharp & Dohme); MorphoSys; Regeneron; Sanofi Genzyme; and Sun Pharma.

This activity was made possible by Pharmacyclics, an AbbVie Company.

Correspondence: Victoria Hood, MPP, National Comprehensive Cancer Network, 3025 Chemical Road, Suite 100, Plymouth Meeting, PA 19462. Email: hood@nccn.org
  • Collapse
  • Expand
  • 1.

    American Cancer Society. Cancer Treatment & Survivorship Facts & Figures 2019–2021: Estimated Numbers of Cancer Survivors by State as of January 1, 2019. American Cancer Society; 2019.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 2.

    NIH, Division of Cancer Control and Population Sciences. Statistics and graphs. Accessed October 11, 2022. Available at: https://cancercontrol.cancer.gov/ocs/statistics#stats

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 3.

    American Cancer Society. Cancer Treatment & Survivorship Facts & Figures 2022-2024. Atlanta: American Cancer Society; 2022. Accessed February 1, 2023. Available at: https://www.cancer.org/research/cancer-facts-statistics/survivor-facts-figures.html

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 4.

    Howlader N, Noone AM, Krapcho M, et al, eds. SEER Cancer Statistics Review, 1975-2012, National Cancer Institute. Bethesda, MD. Accessed February 1, 2023. Available at: https://seer.cancer.gov/archive/csr/1975_2012/.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 5.

    NCCN. Employer toolkit. Accessed January 6, 2023. Available at: https://www.nccn.org/business-policy/business/employer-resources/employer-toolkit

  • 6.

    Blinder VS, Gany FM. Impact of cancer on employment. J Clin Oncol 2020;38:302309.

  • 7.

    Stergiou-Kita M, Pritlove C, Kirsh B. The “Big C”-stigma, cancer, and workplace discrimination. J Cancer Surviv 2016;10:10351050.

  • 8.

    de Boer AG, Taskila T, Ojajärvi A, et al. Cancer survivors and unemployment: a meta-analysis and meta-regression. JAMA 2009;301:753762.

  • 9.

    Banegas MP, Guy GP Jr, de Moor JS, et al. For working-age cancer survivors, medical debt and bankruptcy create financial hardships. Health Aff (Millwood) 2016;35:5461.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 10.

    National Alliance of Caregiving, Cancer Support Community, NCI. Cancer caregiving in the U.S.: an intense, episodic, and challenging care experience. Accessed September 7, 2022. Available at: https://www.caregiving.org/wp-content/uploads/2020/05/CancerCaregivingReport_FINAL_June-17-2016.pdf

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 11.

    Americans With Disabilities Act of 1990, 42 U.S.C. § 12101 et seq (1990).

  • 12.

    Job Accommodation Network. Accommodation and compliance series: workplace accommodations: low cost, high impact. Accessed September 7, 2022. Available at: https://hdi.uky.edu/wp-content/uploads/2022/04/Workplace_Accommodations_Low_Cost_High_Impact.pdf

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 13.

    Rehabilitation Act of 1973, 29 U.S.C § 701 (1973).

  • 14.

    Family and Medical Leave Act of 1993, 29 U.S.C. §§ 2601–2654 (2006).

  • 15.

    Triage Cancer. State laws. Accessed September 7, 2022. Available at: https://triagecancer.org/state-laws

  • 16.

    U.S. National Archives and Records Administration. Health care that works for Americans. Accessed August 31, 2022. Available at: https://obamawhitehouse.archives.gov/healthreform/healthcare-overview

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 17.

    Duarte F, Kadiyala S, Kominski GF, et al. The effect of the Affordable Care Act on cancer detection among the near-elderly. Health Aff (Millwood) 2021;40:258265.

  • 18.

    Fedewa SA, Yabroff KR, Smith RA, et al. Changes in breast and colorectal cancer screening after Medicaid expansion under the Affordable Care Act. Am J Prev Med 2019;57:312.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 19.

    Sabik LM, Tarazi WW, Bradley CJ. State Medicaid expansion decisions and disparities in women’s cancer screening. Am J Prev Med 2015;48:98103.

  • 20.

    Sun Life. 2021 Sun Life Stop-Loss & Health research report: high-cost claims and injectable drug trends analysis. Accessed September 7, 2022. Available at: https://sunlife.showpad.com/share/0fZeQJcnh0S75cPs1XxYT

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 21.

    Mariotto AB, Enewold L, Zhao J, et al. Medical care costs associated with cancer survivorship in the United States. Cancer Epidemiol Biomarkers Prev 2020;29:13041312.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 22.

    Pany MJ, de Brantes F, Levin-Scherz, et al. The essential role of employers in aligning plan design & payment reform to improve quality, enhance equity, and promote value. Accessed September 7, 2022. Available at: https://vbidhealth.com/wp-content/uploads/2021/09/Employer-Whitepaper-092021.pdf

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 23.

    Storrs C. High-deductible insurance plans associated with delays in metastatic cancer diagnosis. Accessed September 7, 2022. Available at: https://dailynews.ascopubs.org/do/10.1200/ADN.22.200994/full/

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 24.

    Adepoju OE, Chae M, Ojinnaka CO, et al. Utilization gaps during the COVID-19 pandemic: racial and ethnic disparities in telemedicine uptake in federally qualified health center clinics. J Gen Intern Med 2022;37:11911197.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 25.

    Weber E, Miller SJ, Astha V, et al. Characteristics of telehealth users in NYC for COVID-related care during the coronavirus pandemic. J Am Med Inform Assoc 2020;27:19491954.

    • PubMed
    • Search Google Scholar
    • Export Citation
  • 26.

    High value care for employers: innovation in an evolving benefit package. Panel discussion at: NCCN June Policy Summit: Cancer Care in the Workplace: Building a 21st Century Workplace for Cancer Patients, Survivors, and Caretakers; June 17, 2022; Washington, DC.

    • PubMed
    • Export Citation
All Time Past Year Past 30 Days
Abstract Views 0 0 0
Full Text Views 3102 1745 29
PDF Downloads 1574 701 17
EPUB Downloads 0 0 0