NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan

Authors:
Kara Martin National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania;

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Alyssa A. Schatz National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania;

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Jan S. White Patient Advocate, Jan Says Onward, Newark, Delaware;

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Hyman Muss University of North Carolina Lineberger Comprehensive Cancer Center, University of North Carolina School of Medicine, Chapel Hill, North Carolina; and

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Aarati Didwania Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Northwestern University Feinberg School of Medicine, Chicago, Illinois.

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Leigh Gallo National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania;

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Robert W. Carlson National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania;

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Patients with cancer have widely divergent experiences throughout their care from screening through survivorship. Differences in care delivery and outcomes may be due to varying patient preferences, patient needs according to stage of life, access to care, and implicit or explicit bias in care according to patient age. NCCN convened a series of stakeholder meetings with patients, caregivers, and patient advocacy groups to discuss the complex challenges and robust opportunities in this space. These meetings informed the NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020, which featured a keynote presentation, multidisciplinary panels, and presentations from patient advocacy organizations. This article encapsulates and expounds upon the findings from the stakeholder meetings and discussions during the summit.

Submitted May 26, 2021; final revision received August 11, 2021; accepted for publication September 8, 2021.

Disclosures: The authors have disclosed that they have no financial interests, arrangements, or affiliations with the manufacturers of any products discussed in this article or their competitors.

Correspondence: Alyssa A. Schatz, MSW, National Comprehensive Cancer Network, 3025 Chemical Road, Suite 100, Plymouth Meeting, PA 19426. Email: schatz@nccn.org

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