NCCN Patient Advocacy Summit: Delivering Value for Patients Across the Oncology Ecosystem

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  • 1 National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania;
  • 2 The National LGBT Cancer Project, New York, New York;
  • 3 Cancer Support Community, Washington, DC; and
  • 4 Penn Center for Cancer Care Innovation, Abramson Cancer Center, Philadelphia, Pennsylvania.
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As the oncology ecosystem shifts from service-based care to outcomes and value-based care, stakeholders cite concerns regarding the lack of patient experience data that are important to the patient community. To address the patient perspective and highlight the challenges and opportunities within policy and clinical decision-making to improve patient-centered care, NCCN hosted the NCCN Patient Advocacy Summit: Delivering Value for Patients Across the Oncology Ecosystem on December 11, 2019, in Washington, DC. The summit featured multidisciplinary panel discussions, keynote speakers, and patient advocate presentations exploring the implications for patient-centered care within a shifting health policy landscape. This article encapsulates and expounds upon the discussions and presentations from the summit.

Submitted May 21, 2020; accepted for publication July 27, 2020.

Disclosures: Mr. Johnson, Ms. Bandini, and Dr. Carlson have disclosed that they are employed by NCCN. The remaining authors have disclosed that they have not received any financial consideration from any person or organization to support the preparation, analysis, results, or discussion of this article.

Correspondence: Terrell Johnson, MPA, National Comprehensive Cancer Network, 3025 Chemical Road, Suite 100, Plymouth Meeting, PA 19462. Email: tjohnson@nccn.org
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